It never seems to amaze me how crazy and sporadic life can be, although yesterday was a bit extreme.....
Rodney found this car/truck thing... CUV - Lincoln MKX - that he just melted over. It was time to purchase a new driving machine anyway. So last week I went online customized the vehicle to his specifications, had it delivered to the dealership then yesterday a wonderful young man drove it to our doorstep.
Hello, this takes internet shopping to a whole new level. laughing. And I thought buying a plasma t.v. online was huge. I am now officially self proclaimed the internet shopping queen!!!!!
okay that was the huge high to the day..
9pm arrived and Jordan walked into the dining room covered in blood. He was playing with Rico and apparently the dogs claws caught his bottom lip in two places. So instead of yelling or sensing danger, Jordan just kept wiping the blood away with his hands. By the time he came to me, his hands were covered, his face from ear to ear and his clothes....... Yes, people I completely freaked!!!! He looked liked he was in a Friday the 13th movie and Jason won!
It was awful. He has such a high tolerance for pain and the distinction of danger clearly does not represent itself. Rodney took him to the Emergency room and after 4 hours and some antibiotics they were back home. No stitches required, thankfully.
This was the extreme part of our day........
Lets hope for a mellow tomorrow.
B & L
T
31.5.07
22.5.07
A thought....
Sunday was absolutely flawless!!! The 1st annual ALS Awareness month picnic. Wow what a long title for a "picnic". lol. Saturday, Samantha took me and the kids to pick up the helium tank and balloons, to Wendy's for a fastfood bribe and then to the grocery to buy provisions for the picnic on Sunday. Shoot, I was tired after all that.
Sunday came and brought us an incredible day. Not too hot, a mild warm breeze, a cloudless sky, good food, great friends, a purpose and a wonderful way to spend a sunny Sunday. The few of us enjoyed each others company and mimosa's..... Mimosa's should be mandatory on Sundays!
Tana was absent from our outing as I have still yet to hear from her. Have heard through the grapevine however, indeed she has deemed me evil once again after a lengthy email I wrote her.
Oh, well. I have just come to a place in my life that settling for less is not an option. Blood or not. Either join me on the road, or the dust from my wheelchair will hit you. Am I too harsh? Maybe. Have I always been? Probably. However, I am done with trying to change. I am who I am. I can only work on me. My tolerance level for slackers is just decreasing.
I do realize that everyone has issues, I'm just to a point where I no longer have the energy to keep stagnate people in my life.
So with that..... Life is good. I am glad to be alive. I am thankful for waking up.
Today I met with my neuro doc at GA Tech to deliver a grant proposal for the development of assistive robots for people living with motor neuron diseases, specifically ALS. WOW!
I need a personal assistant that doesn't talk back!
Yea, I want one.
B & L
T
Sunday came and brought us an incredible day. Not too hot, a mild warm breeze, a cloudless sky, good food, great friends, a purpose and a wonderful way to spend a sunny Sunday. The few of us enjoyed each others company and mimosa's..... Mimosa's should be mandatory on Sundays!
Tana was absent from our outing as I have still yet to hear from her. Have heard through the grapevine however, indeed she has deemed me evil once again after a lengthy email I wrote her.
Oh, well. I have just come to a place in my life that settling for less is not an option. Blood or not. Either join me on the road, or the dust from my wheelchair will hit you. Am I too harsh? Maybe. Have I always been? Probably. However, I am done with trying to change. I am who I am. I can only work on me. My tolerance level for slackers is just decreasing.
I do realize that everyone has issues, I'm just to a point where I no longer have the energy to keep stagnate people in my life.
So with that..... Life is good. I am glad to be alive. I am thankful for waking up.
Today I met with my neuro doc at GA Tech to deliver a grant proposal for the development of assistive robots for people living with motor neuron diseases, specifically ALS. WOW!
I need a personal assistant that doesn't talk back!
Yea, I want one.
B & L
T
11.5.07
Where to start?????
It's been a bit crazy the last few weeks here in my camp..... Summary: One day I went to the ALS clinic to donate more blood and had a painful lunch experience with my sister. Another day Rodney was running late so I drove my scooter down the road to meet Jocelyns bus. The skies opened up and broke my sturdy umbrella around me, then after she got on the scooter and started driving us home; the friggin' scooter died in the middle of the street. Beautiful! Caught in the rain has brought yet another experience for me. We laughed until Rodney rescued us 10 mintues later and pushed me up the street, up the ramp and into the house.... Poor guy got a good workout that day.
I went to a Strategic Planning session for the ALS Board, and was quite pleased with the results.
I hung out with my friend Jenn, we had lunch and got Manicures and Pedicures. We went to my friend Stacy's graduation party and then yesterday just her and I went to Jocelyns award program at school, then to breakfast then to drink a couple of yummy martini's.....
So I have had some great moments. However, the deal breaker is always the same, what to do with a tortured relationship that I have with my sister.
New information has presented itself, same premise, same ill fated choices, only the names of the others involved have changed over a more than 20 year span. I am at a loss. Salvaging just isn't a priority any more. It simply takes too much energy to have her in my life. The pure truth revealed in a photo. What to do????? What do I want to do????
Not sure yet. I am thinking this one out and have advised her it would be a few days before I could calmly speak with her. WoW!! Tami paused for evaluation before declaring war? What's up with that? It's called evolving my friends. I am really trying here to do the right thing and not f**k the situation up more than it is.
I know that the only person I can change is me. But, can I accept those that do not meet my expectations and readily know they never will? Unconditional, non-judgemental love. Who does this? Parents? Siblings? Spouses? Lovers? The jury is out. Not sure when it will come back and my mouth remains shut until I can answer with conviction.
Some who know me are probably bewildered that I have chosen to think instead of slay with words. I certainly have never been labeled as non-confrontational. The magnitude of this situation is life altering. Scary actually.
Stay tuned.
T
I went to a Strategic Planning session for the ALS Board, and was quite pleased with the results.
I hung out with my friend Jenn, we had lunch and got Manicures and Pedicures. We went to my friend Stacy's graduation party and then yesterday just her and I went to Jocelyns award program at school, then to breakfast then to drink a couple of yummy martini's.....
So I have had some great moments. However, the deal breaker is always the same, what to do with a tortured relationship that I have with my sister.
New information has presented itself, same premise, same ill fated choices, only the names of the others involved have changed over a more than 20 year span. I am at a loss. Salvaging just isn't a priority any more. It simply takes too much energy to have her in my life. The pure truth revealed in a photo. What to do????? What do I want to do????
Not sure yet. I am thinking this one out and have advised her it would be a few days before I could calmly speak with her. WoW!! Tami paused for evaluation before declaring war? What's up with that? It's called evolving my friends. I am really trying here to do the right thing and not f**k the situation up more than it is.
I know that the only person I can change is me. But, can I accept those that do not meet my expectations and readily know they never will? Unconditional, non-judgemental love. Who does this? Parents? Siblings? Spouses? Lovers? The jury is out. Not sure when it will come back and my mouth remains shut until I can answer with conviction.
Some who know me are probably bewildered that I have chosen to think instead of slay with words. I certainly have never been labeled as non-confrontational. The magnitude of this situation is life altering. Scary actually.
Stay tuned.
T
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